Attention, when it comes to my health, makes me beyond uncomfortable. I had a hard time announcing my pregnancies in person and usually got my husband to do it…
Born with a birth defect I have spent much of my life trying to be included in the normal category… I soon realised that there is no normal and that we are all broken in some way. This made me decide invisible was a good choice. I worked hard, in my youth, at being unnoticeable and thanks to the in-obvious nature of my birth defect I was really successful at not being pointed out for this fact of my life.
I started to share about the birth defect with more people once I was older, because I really do see the miracle in it all. Based on the diagnosis my mom was given when I was born I am a walking talking miracle… It was painfully soon that I learned to hold back on the amount of information I gave. People got WEIRD in their reactions and responses. Some would all of a sudden treat me as fragile, others would make jokes… and although I don’t mind slip up comments about my birth defect I am not big on being mocked with jokes about it… and all so often I got very judgmental comments about being content in living with it.
Well… after years of trying to be indistinguishable amidst my circle of acquaintances I have recently been diagnosed with another reason for attention. While the specialists wondered how I felt about being saddled with a genetic disease I was only thinking about one thing… oh great, now I have to figure out how to painlessly tell everyone…. As far as I know, the other kids in the family from my generation have all had negative results for the gene.
All I can say is I am not special! We are all broken, we all die of something at some time and we all pass on and are passed the death gene by our parents.
The final thing I want to say is my God is good, all the time, Jesus is GOOD.
TTFN
